Journal of Community Genetics - 2022

61 articles | Last updated: 2025-12-03 14:12:57
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Mothers of children with Down syndrome: a clinical and epidemiological study
Ethical, legal, and social implications of genetic risk prediction for multifactorial disease: a narrative review identifying concerns about interpretation and use of polygenic scores
Evaluating visual imagery for participant understanding of research concepts in genomics research
Lost in print: difficulty in reading online information pertaining to phenylketonuria
Identification of psychoeducation needs and an intervention response for pre-symptomatic Huntington’s disease
Understanding how educational interventions improve treatment adherence in patients with familial hypercholesterolaemia: a systematic review
Human genetics education as part of the Japanese Cancer Education Comprehensive Support Project
Adoptees’ views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK
Cost-effectiveness of a gene sequencing test for Alzheimer’s disease in Ontario
Telehealth in genetic counselling consultations: the impact of COVID-19 in a Portuguese genetic healthcare service
Service provision of genetics health care in Portugal
Cross-sectional survey on genetic testing utilization and perceptions in Wisconsin Amish and Mennonite communities
Ophthalmic genetic counselling: emerging trends in practice perspectives in Asia
Identifying the current status and future needs of clinical, educational, and laboratory genetics services in Pakistan: a web-based panel discussion
Interest in genetic testing and risk-reducing behavioral changes: results from a community health assessment in New York City
Sickle cell disease-related knowledge and perceptions of traditional healers in tribal communities in India: implications on sickle cell disease programme
Direct-to-consumer genetic testing in the news: a descriptive analysis
Parents’ perspectives on the use of children’s facial images for research and diagnosis: a survey
Genetic screening of relatives of decedents experiencing sudden unexpected death: medical examiner’s office referrals to a multi-disciplinary cardiogenetics program
The perception of parents with a child with sickle cell disease in Ghana towards prenatal diagnosis
Knowledge and awareness of sickle cell disease: a cross sectional study amongst unmarried adults in Nigeria’s capital city
Resource allocation in genetic and genomic medicine
Stakeholder knowledge and attitudes toward the use of predictive genetic testing in South Africa
Experiences of individuals receiving a sex chromosome multisomy diagnosis
Genes, exposures, and interactions on preterm birth risk: an exploratory study in an Argentine population
Insight into how patients with prostate cancer interpret and communicate genetic test results: implications for families
Short Communication: Restrictions in care following the COVID-19 pandemic severely impacted Machado-Joseph disease patients: a study in the Azores Islands, Portugal
Variation among DNA banking consent forms: points for clinicians to bank on
Experiences of individuals with a variant of uncertain significance on genetic testing for hereditary cancer risks: a mixed method systematic review
Comparison of willingness and preference for genetic counseling via telemedicine: before vs. during the COVID-19 pandemic
Telemedicine in the Amish and Mennonite communities of Wisconsin
Correction to: Co‑designing models for the communication of genomic results for rare diseases: a comparative study in the Czech Republic and the United Kingdom
OBGYN providers’ lack of knowledge and management of genetic risks due to advanced paternal age underscore the need for updated practice guidance
Multisite assessment of the impact of a prenatal testing educational App on patient knowledge and preparedness for prenatal testing decision making
Carrier detection probabilities for autosomal recessive variants in unrelated and consanguineous couples — an evaluation of the 86 genes of the ACMG ‘Tier 3’ panel non-Finnish Europeans
Attitudes of Filipino parents of children with Down syndrome on noninvasive prenatal testing
Cancer patients’ understandings of genetic variants of uncertain significance in clinical care
Comparing the attitudes of physicians and non-physicians toward communicating a patient’s BRCA1 mutation to a first-degree relative against a patient’s wishes
Co-designing models for the communication of genomic results for rare diseases: a comparative study in the Czech Republic and the United Kingdom
Attitudes and interest in incorporating BRCA1/2 cancer susceptibility testing into reproductive carrier screening for Ashkenazi Jewish men and women
Parenthood among individuals with Turner syndrome: results of an online survey of attitudes towards pregnancy, adoption, and surrogacy
Families with complex needs: an inside perspective from young people, their carers, and healthcare providers
QF-PCR: a valuable first-line prenatal and postnatal test for common aneuploidies in South Africa
Communicating the diagnosis of Klinefelter syndrome to children and adolescents: when, how, and who?
Increased family history documentation in internal medicine resident continuity clinic at a community hospital through resident-led structured genetic education program
Patient-facing genetic and genomic mobile apps in the UK: a systematic review of content, functionality, and quality
Correction to: Mothers’ knowledge and attitudes about newborn screening in Jordan
Uptake of prenatal genetic diagnosis and termination of pregnancy by Omani Muslim families at risk of genetic disorders: experience over a 9-year period
Considerations for developing regulations for direct-to-consumer genetic testing: a scoping review using the 3-I framework
Psychiatric symptoms in a Spanish sample with hereditary cancer risk
Peripheral health workers’ knowledge and experience related to sickle cell disease: an in-depth interview study in six tribal-dominated districts of India tribal-dominated
Simulating the Genetics Clinic of the Future — whether undergoing whole-genome sequencing shapes professional attitudes
Development and pilot testing of an online decision aid for women considering risk-stratified breast screening
Public interest in unexpected genomic findings: a survey study identifying aspects of sequencing attitudes that influence preferences
A systematic review of the views of healthcare professionals on the scope of preimplantation genetic testing
YouTube as an information source on BRCA mutations: implications for patients and professionals
The haematology of Jamaicans: red cell indices in HbAA, HbAS, HbAC, and HbA-HPFH genotypes
Opinions and experiences of recontacting patients: a survey of Australasian genetic health professionals
Mothers’ knowledge and attitudes about newborn screening in Jordan
Colorectal Cancer Survivors’ Receptivity toward Genomic Testing and Targeted Use of Non-Steroidal Anti-Inflammatory Drugs to Prevent Cancer Recurrence
Beliefs on the causes of birth defects as perceived by mothers of children with birth defects in a tertiary care hospital in the Philippines