| “To perpetuate blindness!”: attitudes of UK patients with inherited retinal disease towards genetic testing |
|
|
|
|
|
|
|
|
|
| Considerations for bio-specimen collection among black women residing in the rural Deep South participating in a cancer prevention study |
|
|
|
|
|
|
|
|
|
| Predictive genetic testing, risk communication, and risk perception: an international expert meeting in Berlin, Germany |
|
|
|
|
|
|
|
|
|
| Public attitudes regarding the use of electronic health information and residual clinical tissues for research |
|
|
|
|
|
|
|
|
|
| Cancer risk communication, predictive testing and management in France, Germany, the Netherlands and the UK: general practitioners' and breast surgeons' current practice and preferred practice respons |
|
|
|
|
|
|
|
|
|
| Increased prevalence of inherited neuromuscular disorders due to endogamy in Northeast Brazil: the need of community genetics services |
|
|
|
|
|
|
|
|
|
| Captious certainties: makings, meanings and misreadings of consumer-oriented genetic testing |
|
|
|
|
|
|
|
|
|
| Carrier screening for inherited haemoglobin disorders among secondary school students and young adults in Latium, Italy |
|
|
|
|
|
|
|
|
|
| Spatial and temporal analysis of infant mortality from congenital malformations in Brazil (1996–2010) |
|
|
|
|
|
|
|
|
|
| Expanded carrier screening panels—does bigger mean better? |
|
|
|
|
|
|
|
|
|
| Development of multidisciplinary committees for decision making and care management in hereditary colon cancer: the French state of the art |
|
|
|
|
|
|
|
|
|
| Knowledge and attitudes towards genetic testing in those affected with Parkinson’s disease |
|
|
|
|
|
|
|
|
|
| Health needs assessment for congenital anomalies in middle-income countries: Examining the case for neural tube defects in Brazil |
|
|
|
|
|
|
|
|
|
| BRCA sequencing and large rearrangement testing in young Black women with breast cancer |
|
|
|
|
|
|
|
|
|
| Psychosocial approaches to participation in BRCA1/2 genetic risk assessment among African American women: a systematic review |
|
|
|
|
|
|
✓ |
✓ |
African American |
| “CAPABILITY” and “Genetic testing in emerging economies” (GenTEE) |
|
|
|
|
|
|
|
|
|
| Patient compliance based on genetic medicine: a literature review |
|
|
|
|
|
|
|
|
|
| CHACO outreach project: the development of a primary health care-based medical genetic service in an Argentinean province |
|
|
|
|
|
|
|
|
|
| High school Tay–Sachs disease carrier screening: 5 to 11-year follow-up |
|
|
|
|
|
|
|
|
|
| Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health |
|
|
|
|
|
|
|
|
|
| Patient-reported hereditary breast and ovarian cancer in a primary care practice |
|
|
|
|
|
|
|
|
|
| Altered incidence of meiotic errors and Down syndrome birth under extreme low socioeconomic exposure in the Sundarban area of India |
|
|
|
|
|
|
|
|
|
| The Greater Sekhukhune-CAPABILITY outreach project |
|
|
|
|
|
|
|
|
|
| Primary care patients’ views and decisions about, experience of and reactions to direct-to-consumer genetic testing: a longitudinal study |
|
|
|
|
|
|
|
|
|
| Genetic services and testing in the Sultanate of Oman. Sultanate of Oman steps into modern genetics |
|
|
|
|
|
|
|
|
|
| Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiatives |
|
|
|
|
|
|
|
|
|
| Health needs assessment for medical genetic services for congenital disorders in middle- and low-income nations |
|
|
|
|
|
|
|
|
|
| Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study |
|
|
|
|
|
|
|
|
|
| Awareness and interest in biospecimen donation for cancer research: views from gatekeepers and prospective participants in the Latino community |
|
|
|
|
|
|
✓ |
|
Latino community |
| ‘No thanks’—reasons why pregnant women declined an offer of cystic fibrosis carrier screening |
|
|
|
|
|
|
|
|
|
| How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry |
|
|
|
|
|
|
|
|
|
| Couples at risk for spinocerebellar ataxia type 2: the Cuban prenatal diagnosis experience |
|
|
|
|
|
|
|
|
|
| Biobanking for research: a survey of patient population attitudes and understanding |
|
|
|
|
|
|
|
|
|
| Genetic services and testing in China |
|
|
|
|
|
|
|
|
|
| The disclosure of incidental genomic findings: an “ethically important moment” in pediatric research and practice |
|
|
|
|
|
|
|
|
|
| Gene–environment interactions and health inequalities: views of underserved communities |
|
|
|
|
|
|
|
|
|
| Infant mortality due to congenital malformation in Argentina (1998–2009): temporal and spatial analysis of neonatal and postneonatal components |
|
|
|
|
|
|
|
|
|
| Two decades of pre-marital screening for beta-thalassemia in central Iran |
|
|
|
|
|
|
|
|
|
| Genetic susceptibility testing for chronic disease and intention for behavior change in healthy young adults |
|
|
|
|
|
|
|
|
|
| Anticipating the arrival of low-penetrance genetic testing to primary care medicine |
|
|
|
|
|
|
|
|
|
| “You don’t have to keep everything on paper”: African American women’s use of family health history tools |
|
|
|
|
|
|
|
|
|
| Ethnicity, educational level and attitudes contribute to parental intentions about genetic testing for child obesity |
|
|
|
|
|
|
|
|
|
| Direct-to-consumer genomic testing from the perspective of the health professional: a systematic review of the literature |
|
|
|
|
|
|
|
|
|
| A family genetic risk communication framework: guiding tool development in genetics health services |
|
|
|
|
|
|
|
|
|
| “He didn’t say that thalassaemia might come up” — β-thalassaemia carriers’ experiences and attitudes |
|
|
|
|
|
|
|
|
|
| Attitudes towards prenatal diagnosis and abortion in a multi-ethnic country: a survey among parents of children with thalassaemia major in Malaysia |
|
|
|
|
|
|
|
|
|