American Journal of Medical Genetics Part C: Seminars in Medical Genetics - 2009

41 articles | Last updated: 2025-12-03 14:12:55
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Ellis–van Creveld syndrome and Weyers acrodental dysostosis are caused by cilia‐mediated diminished response to hedgehog ligands
Disorders of left–right asymmetry: Heterotaxy and situs inversus
Cilia and the ciliopathies: An introduction
The molecular basis of oral‐facial‐digital syndrome, type 1
Liver and kidney disease in ciliopathies
Ciliary biology: Understanding the cellular and genetic basis of human ciliopathies
Making sense of cilia in disease: The human ciliopathies
Clinical and molecular features of Joubert syndrome and related disorders
Outcomes of genetics services: Creating an inclusive definition and outcomes menu for public health and clinical genetics services
Quality assurance in medical and public health genetics services: A systematic review
Identification and prioritization of quality indicators in clinical genetics: An international survey
Improving genetic health care: A Northern New England pilot project addressing the genetic evaluation of the child with developmental delays or intellectual disability
Development, testing, and validation of a patient satisfaction questionnaire for use in the clinical genetics setting
Peering into the chasm: Improving the quality of clinical genetic services
Evidence‐based medicine and practice guidelines: Application to genetics
Health‐related quality of life measures in genetic disorders: An outcome variable for consideration in clinical trials
Quality in clinical genetics
Improving service delivery by evaluation of the referral pattern and capacity in a clinical genetics setting
Health care supervision for twin pairs
Epidemic of plurality and contributions of assisted reproductive technology therein
Not really identical: Epigenetic differences in monozygotic twins and implications for twin studies in psychiatry
Twinning on the brain: The effect on neurodevelopmental outcomes
Two miracles, one year later
MFM/geneticist view on prenatal management of twins
Clinical significance of chimerism
The genetics of twinning: From splitting eggs to breaking paradigms
Familial monozygotic twinning: A report of seven pedigrees
Non‐identical monozygotic twins, intermediate twin types, zygosity testing, and the non‐random nature of monozygotic twinning: A review
Religiosity, spirituality, and psychological distress in African‐Americans at risk for having a hereditary cancer predisposing gene mutation
Religion, spirituality, and genetics: Mapping the terrain for research purposes
Making sense of genetic uncertainty: The role of religion and spirituality
Christianity, health, and genetics
The personal is political, the professional is not: Conscientious objection to obtaining/providing/acting on genetic information
Religious traditions and prenatal genetic counseling
Are enhancement technologies “unnatural”? Musings on recent Christian conversations
The patient as person in an increasingly gene‐centric universe: How healthcare professionals should think about genomics and evolution
Religious and spiritual issues in medical genetics
A religious framework as a lens for understanding the intersection of genetics, health, and disease
The role and impact of personal faith and religion among genetic service providers
God and genes in the caring professions: Clinician and clergy perceptions of religion and genetics
Moving up the slippery slope: Mandated genetic screening on Cyprus